Jeune Syndrome Foundation


“Make Jeune’s Known”

About the Jeune Syndrome Foundation

About the Foundation

The Jeune Syndrome Foundation has been set up by a Jeunes family for Jeunes families.

On this site you will find current information on what Jeune Syndrome is, why it occurs and common symptoms.

You will also find a page of biographies written by people who have experienced or live with Jeune Syndrome.

Did you know the Jeune Syndrome Foundation has leaflets telling you all you need to know about Jeune’s?

You can download a copy HERE.

Our Community

The Jeune Syndrome Foundation Facebook Page is a great place to come and chat and we would welcome any suggestions you might have to make this support group effective in supporting you and your family through your Jeunes journey. You can talk to other people living with Jeunes from all over the world who will be only too happy to share their experience and advice with you.

If you have any ideas or suggestions on how to improve the group or website. Please get in touch with the details below.

“Lets Make Jeunes Known”

From our Facebook page.

5 days ago

Jeunes Syndrome Foundation

So pleased so be part of this wonderful magazine!We are honoured to be joined by the following new charity members this season - helping us raise awareness for a wide variety of #rarediseases during #RareRevMembersMonth

aPODD Foundation PBC Foundation Jeunes Syndrome Foundation DEBRA UK

If you would like to find out more about joining our #RareRevolutionaires charity membership scheme take a look here

www.rarerevolutionmagazine.com/charities.html
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3 weeks ago

Lana James

Thankyou so much for my winnings Valerie! Cant wait to read it with my daughter tonight. 🖤💜🖤💜

Hope your well & wishing you a speedy recovery xxx
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