Jeune Syndrome Foundation


“Make Jeune’s Known”

About the Jeune Syndrome Foundation

About the Foundation

The Jeune Syndrome Foundation has been set up by a Jeunes family for Jeunes families.

On this site you will find current information on what Jeune Syndrome is, why it occurs and common symptoms.

You will also find a page of biographies written by people who have experienced or live with Jeune Syndrome.

Did you know the Jeune Syndrome Foundation has leaflets telling you all you need to know about Jeune’s?

You can download a copy HERE.

Our Community

The Jeune Syndrome Foundation Facebook Page is a great place to come and chat and we would welcome any suggestions you might have to make this support group effective in supporting you and your family through your Jeunes journey. You can talk to other people living with Jeunes from all over the world who will be only too happy to share their experience and advice with you.

If you have any ideas or suggestions on how to improve the group or website. Please get in touch with the details below.

“Lets Make Jeunes Known”

From our Facebook page.

As the founder of the Foundation I just wanted to say thank you so much for all your wonderful messages of support and inspiration. Everyone hits that brick wall sometimes, but I'm very lucky to have all you wonderful friends to keep me going. Thank you from the bottom of my heart ❤️ ... See MoreSee Less

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Hello everyone..... Out of curiosity what is everyones CO2 baseline level.... Zachary is currently herr at Scottish Rite in Atlanta for high CO2 levels at 93 this morning and O2 levels dropping to 49 last night. Just curious what a "normal" or "average" base line is for Jeune patients.... Thanks! ... See MoreSee Less

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