Jeune Syndrome Foundation


“Make Jeune’s Known”

About the Jeune Syndrome Foundation

About the Foundation

The Jeune Syndrome Foundation has been set up by a Jeunes family for Jeunes families.

On this site you will find current information on what Jeune Syndrome is, why it occurs and common symptoms.

You will also find a page of biographies written by people who have experienced or live with Jeune Syndrome.

Did you know the Jeune Syndrome Foundation has leaflets telling you all you need to know about Jeune’s?

You can download a copy HERE.

Our Community

The Jeune Syndrome Foundation Facebook Page is a great place to come and chat and we would welcome any suggestions you might have to make this support group effective in supporting you and your family through your Jeunes journey. You can talk to other people living with Jeunes from all over the world who will be only too happy to share their experience and advice with you.

If you have any ideas or suggestions on how to improve the group or website. Please get in touch with the details below.

“Lets Make Jeunes Known”

Jeunes Syndrome Foundation

1 week 6 days ago

Welcome to are new members.
Please be free to ask any questions.
We are a friendly lot and if we can help you we will.

Jeunes Syndrome Foundation

1 month 5 days ago

Happy Jeunes Foundation Day 2021 Today would have also been Valerie Kiln-Barfoot, founder 32nd birthday. We at the foundation are looking for MEMBERS children to drawn or painted picture by you that we could use for Jeunes Syndrome Foundation 2022.

Jeunes Syndrome Foundation

1 month 1 week ago

Happy Easter to you all.

Jeunes Syndrome Foundation

1 month 1 week ago

Someone has sent the foundation a message. But unfortunately Facebook won’t show it.
Maybe that person can retry or email us at jeunesssyndrome @gmail.com

Linda

Jeunes Syndrome Foundation

1 month 3 weeks ago

Hope you are all keeping well? Welcome to our new members that have joined recently. Also I’d like to thank Roger and Barbara Miles for the £50 that they donated to the foundation to celebrate the forthcoming birthday of the