Jeune Syndrome Foundation

“Make Jeune’s Known”

About the Jeune Syndrome Foundation

About the Foundation

The Jeune Syndrome Foundation has been set up by a Jeunes family for Jeunes families.

On this site you will find current information on what Jeune Syndrome is, why it occurs and common symptoms.

You will also find a page of biographies written by people who have experienced or live with Jeune Syndrome.

Did you know the Jeune Syndrome Foundation has leaflets telling you all you need to know about Jeune’s?

You can download a copy HERE.

Our Community

The Jeune Syndrome Foundation Facebook Page is a great place to come and chat and we would welcome any suggestions you might have to make this support group effective in supporting you and your family through your Jeunes journey. You can talk to other people living with Jeunes from all over the world who will be only too happy to share their experience and advice with you.

If you have any ideas or suggestions on how to improve the group or website. Please get in touch with the details below.

“Lets Make Jeunes Known”

From our Facebook page.

W ell done everyone that entered this weekends competition with the answer

Zebra fish

Congratulations to Leanne Cleary who has won the prize. Private message us Leanne with your contact details!
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Well done everyone who entered our competition! I will announce the winner tomorrow ... See MoreSee Less

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Hi everyone! Fancy winning yourself some Jeune Syndrome Foundation goodies this Sunday? All you have to do is answer this question -

What are the type of fish that we use to research Jeune Syndrome?

If it's a draw the winner will be picked at random. You've got until midnight (British summer time) on Monday 6th of August

Good luck!!
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