Jeune Syndrome Foundation

“Make Jeune’s Known”

About the Jeune Syndrome Foundation

About the Foundation

The Jeune Syndrome Foundation has been set up by a Jeunes family for Jeunes families.

On this site you will find current information on what Jeune Syndrome is, why it occurs and common symptoms.

You will also find a page of biographies written by people who have experienced or live with Jeune Syndrome.

Did you know the Jeune Syndrome Foundation has leaflets telling you all you need to know about Jeune’s?

You can download a copy HERE.

Our Community

The Jeune Syndrome Foundation Facebook Page is a great place to come and chat and we would welcome any suggestions you might have to make this support group effective in supporting you and your family through your Jeunes journey. You can talk to other people living with Jeunes from all over the world who will be only too happy to share their experience and advice with you.

If you have any ideas or suggestions on how to improve the group or website. Please get in touch with the details below.

“Lets Make Jeunes Known”

From our Facebook page.

As I'm laid up in bed with the flu watching reruns of Gilmore Girls (the go to programme for a poorly Val) I'm reminded that flu season is well and truly underway. And children are perfectly formed flu spreaders. So get the free nasal spray for all 2, 3 and 4 yr olds.

But for all us Jeune's people it's important to get your flu jab. And this goes for anyone that comes into regular contact with us (parents, Carer's, siblings, healthcare workers)

Flu kills people with Jeune Syndrome so remember to -

Catch it , Bin it , Kill it
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“The flu nasal spray for children aged 2, 3 or 4 is just as effective as the injected vaccine:

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