Jeune Syndrome Foundation


“Make Jeune’s Known”

About the Jeune Syndrome Foundation

About the Foundation

The Jeune Syndrome Foundation has been set up by a Jeunes family for Jeunes families.

On this site you will find current information on what Jeune Syndrome is, why it occurs and common symptoms.

You will also find a page of biographies written by people who have experienced or live with Jeune Syndrome.

Did you know the Jeune Syndrome Foundation has leaflets telling you all you need to know about Jeune’s?

You can download a copy HERE.

Our Community

The Jeune Syndrome Foundation Facebook Page is a great place to come and chat and we would welcome any suggestions you might have to make this support group effective in supporting you and your family through your Jeunes journey. You can talk to other people living with Jeunes from all over the world who will be only too happy to share their experience and advice with you.

If you have any ideas or suggestions on how to improve the group or website. Please get in touch with the details below.

“Lets Make Jeunes Known”

From our Facebook page.

Hey everyone! Did you know that today is international GIVING TUESDAY. A day to give back to charity. So why don't you give back to The Jeune Syndrome Foundation by either donating through the donate button on our website or pledging to organise a fundraising event?

We have made great progress this year with our info packs and bringing families together through our family conference. And judging by the smile on these cuties faces I'd say it was a success

So please give what you can and thank you
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Lots of our Jeune children need SEN support in school. This is a really useful chart talking you through the process and what to do if you disagree with the decision ... See MoreSee Less

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